Japan Diabetes Society
Japan Hypertension Society
Japanese Society of Arteriosclerosis
Japanese Society of Nephrology
Japanese Society of Clinical Laboratory Medicine
Japan Association for Medical Informatics

 In the field of lifestyle-related diseases, a huge amount of information has been accumulated for a variety of purposes, including daily medical treatment, specialized medical treatment, regional collaboration, clinical research and epidemiological research, as well as medical education and patient education. In recent years, with the progress of information technology, the speed and scale of data accumulation has further increased. However, when collecting these data, there has been no standardization of how items are determined or how units and data granularity are set. As a result, it is difficult to mutually use the accumulated data and make aggregate statistics, making it difficult to enjoy the benefits of informatization.
 In order to escape from this situation and promote the efficient use of medical information, it is important that not only a single specialist but also many primary care physicians who treat patients with lifestyle-related diseases can easily input information and immediately benefit from it. It is necessary to build a system that allows people to enjoy the benefits. Therefore, starting in fiscal 2011, the Japan Diabetes Society and the Japan Association for Medical Informatics collaborated with the Cabinet Secretariat IT Office (at that time) to satisfy conditions that would allow data to be reused and easily accumulate data even if the purpose of data collection was different. We decided to develop two types of standard data item sets. In other words, there is a ``diabetes minimum item set'' that should be included in data collection for any purpose, and a ``self-management item set'' that includes this minimum item set and is useful for self-management by patients with mild lifestyle-related diseases. ”.
 In fiscal 2012, the Japanese Society of Hypertension, the Japanese Society of Arteriosclerosis, and the Japanese Society of Nephrology supported this activity, creating a "minimum item set" for hypertension, dyslipidemia, and chronic kidney disease (CKD), and a "self-management item set." ” after ensuring consistency between diseases.Formulation (*1)did. By February 2014, each of these disease-specific datasets had been approved by the board of directors of the clinical societies responsible for each disease, and the data sets for all four diseases had been approved by the Japan Association for Medical Informatics board of directors. Therefore, in order to make the ``minimum item set'' and ``self-management item set'' for these four diseases widely available, we have put them here.Public (*2)It's up to me.

 

*1:Formulation of “minimum item set” and “self-management item set” for the four diseases

*2:Minimum item set by disease and list of item sets necessary for patient self-management including these items

 

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