Regarding the revision of the "core item set" and "self-management item set" for four lifestyle-related diseases and the release of the "Personal Health Record (PHR) recommended settings"
Japan Diabetes Society
Japan Hypertension Society
Japanese Society of Arteriosclerosis
Japanese Society of Nephrology
Japanese Society of Clinical Laboratory Medicine
Japan Association for Medical Informatics
In the field of lifestyle-related diseases, a huge amount of information has been accumulated for a variety of purposes, including daily medical treatment, specialized medical treatment, regional collaboration, clinical research and epidemiological research, as well as medical education and patient education. In recent years, with the progress of information technology, the speed and scale of data accumulation has further increased. However, when collecting these data, there has been no standardization of how items are determined or how units and data granularity are set. As a result, it is difficult to mutually use the accumulated data and make aggregate statistics, making it difficult to enjoy the benefits of informatization.
In order to escape from this situation and promote the efficient use of medical information, it is necessary to standardize related medical information not only from specialists related to the target disease but also from many family doctors who examine patients with lifestyle-related diseases. It is necessary to build a system that allows information to be collected in a format and the benefits of this information can be enjoyed in medical treatment and research. Therefore, starting in fiscal 2011, the Japan Diabetes Society, the Japanese Society of Hypertension, the Japanese Society of Arteriosclerosis, the Japanese Society of Nephrology, the Japanese Society of Clinical Laboratory Medicine, and the Japan Association for Medical Informatics collaborated with the Cabinet Secretariat IT Office (at that time) to develop a system for diabetes and hypertension. "Lifestyle-related disease core item set collection" (renamed from "disease minimum item set collection" in 4) that should be included in data collection for any purpose for four diseases: CKD, dyslipidemia, and chronic kidney disease (CKD) With the approval of each academic society's board of directors, we have created the ``Lifestyle-related Disease Self-Management Item Set'', which includes this lifestyle-related disease core item set and is useful for self-management by patients with mild lifestyle-related diseases. It was formulated by February 2018 and published on the Japan Association for Medical Informatics website.
Furthermore, starting in FY2016, the six clinical societies mentioned above will support the AMED project, ``Research aimed at standardizing and creating business models for services to prevent the aggravation of lifestyle-related diseases in collaboration with medical insurers, disease management providers, medical institutions, etc.'' Based on this, we revised the "Lifestyle Disease Core Item Set" and the "Lifestyle Disease Self-Management Item Set" (*6), and created the "Personal Health Record" based on the "Lifestyle Disease Self-Management Item Set". PHR) recommended settings (*4) were developed. All of these have been approved by the boards of clinical societies responsible for each disease, and the datasets for all four diseases have also been approved by the Japanese Society of Clinical Laboratory Medicine and the Japan Association for Medical Informatics boards. The PHR recommended settings were developed as reference indicators for the use of the previously developed item set collection in the prevention and management of lifestyle-related diseases. I have decided to publish it here.
We have also created a list (*10) of the main items that correspond to the "Lifestyle-related disease self-management item set collection" of the 10th edition of the Clinical Test Item Classification Code (JLACXNUMX) developed by the Japan Society of Clinical Laboratory Medicine. Therefore, I decided to publish it here as a reference material.
Please note that these contents may change in the future due to medical and technological trends and various guidelines.
This "PHR Recommended Settings" is just a collection of reference indicators for the use of the PHR system, and the final decision on each patient's treatment goals and treatment methods is left to the doctor in charge, depending on the patient's condition and pathological condition. It shall be clearly stated that this is done based on judgment and instructions.
*2: “Lifestyle-related disease core item set collection (2nd edition)” and “Lifestyle-related disease self-management item set collection (2018nd edition)” (released in October 10)
-Purpose of revision
-Lifestyle-related disease core item set collection (2nd edition) and lifestyle-related disease self-management item set collection (2nd edition)
*2018: “PHR Recommended Settings” 10st edition (released October XNUMX)
-Purpose of formulation
-PHR recommended settings (1st edition)
Old version:Regarding the release of "minimum item set collection" and "self-management item set collection" for four lifestyle-related diseases(Released in July 2014)
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